1887
  1. الرئيسية
  2. A-Z Publications
  3. Doha International Family Institute Journal
  4. المجلد 2023, العدد 2
  5. المقالة
Volume 2023, Issue 2
  • E-ISSN: 2309-3927

ملخص

Children with neurodevelopmental disabilities (CWNDs) are reported to face far greater challenges, which result in worse outcomes, than children with physical disabilities. Very few studies quantify the cost of disability around the world, and to date no study has been based on CWNDs in Qatar. Through an in-depth quantitative and qualitative analysis, this study explores the financial dynamics of 15 families with CWNDs in Qatar. It examines the met and unmet costs related to medical care, education, and everyday well-being. Quantitatively, within the small sample, the total disability price tag of raising CWNDs in Qatar was found to be between QAR 2,700 and 40,000 per month, which can represent between 15 and 420% of the average family’s median income. From a qualitative perspective, financial difficulties played a central role in raising a child with a disability. This factor was also exacerbated in cases where families had good financial capacity. The lack of inclusive and affordable educational institutes and recreational activities, as well as irregular, spaced apart, or outdated modes of treatment were other significant challenges they faced. The study concludes with policy recommendations for these three areas.

© 2023 The Author(s), licensee HBKU Press.
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References

  1. Al-Farsi, Y., Waly, M., Al-Sharbati, M., Al-Shafaee, M., Al-Farsi, O., Al-Fahdi, S., &Al-Adawi, S. (2013). Variation in socio-economic burden for caring of children with autism spectrum disorder in Oman: Caregiver perspectives. Journal of Autism & Developmental Disorders, 43(5), 1214–1221. https://doi.org/10.1007/s10803-012-1667-9
  2. Ali, Z. (2014). Economic costs of disability in Bangladesh. Bangladesh Development Studies, 37(4), 17–33.
  3. Burchardt, T., &Zaidi, A. (2008). Disabled children, poverty and extra costs. In J. Strelitz, & R. Lister (Eds.), Why money matters: Family income, poverty, and children’s lives (pp. 26–33). Save the Children. https://resourcecentre.savethechildren.net/pdf/why_money_ matters.pdf/
  4. Burton, P., &Phipps, S. (2009). Economic costs of caring for children with disabilities in Canada. Canadian Public Policy, 35(3), 269–290.
  5. DIFI (Doha International Family Institute). (2018). The well-being of families living with autism spectrum disorder in Qatar. HBKU Press.
  6. Hunter, R. (2016). Evaluating the costs and cost-effectiveness of interventions for people with learning disabilities and behaviour that challenges: The need to improve the evidence base. Tizard Learning Disability Review, 21(4), 181–185. https://doi.org/10.1108/TLDR-06-2016-0016
  7. Indecon. (2021). The cost of disability in Ireland. https://www.gov.ie/en/publication/1d84e-the-cost-of-disability-in-ireland-research-report/
  8. Ipek, E. (2020). The costs of disability in Turkey. Journal of Family and Economic Issues, 41(2), 229–237. https://doi.org/10.1007/s10834-019-09642-2
  9. Järbrink, K., Fombonne, E., &Knapp, M. (2003). Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study. Journal of Autism and Developmental Disorders, 33(4), 395–402.
  10. John, E., Thomas, G., & Touchet, A. (2019). The disability price tag 2019: Policy report. Scope.
  11. Karande, S., D’Souza, S., Gogtay, N., Shiledar, M., &Sholapurwala, R. (2019). Economic burden of specific learning disability: A prevalence-based cost of illness study of its direct, indirect, and intangible costs. Journal of Postgraduate Medicine, 65(3), 152–159. https://doi.org/10.4103/jpgm.JPGM_413_18
  12. Kheir, N. M., Ghoneim, O. M., Sandridge, A. L., Hayder, S. A., Al-Ismail, M. S., &Al-Rawi, F. (2012). Concerns and considerations among caregivers of a child with autism in Qatar. BMC Research Notes, 5(1), 290. https://doi.org/10.1186/1756-0500-5-290
  13. Loyalka, P., Liu, L., Chen, G., &Zheng, X. (2014). The cost of disability in China. Demography, 51(1), 97–118. https://doi.org/10.1007/s13524-013-0272-7
  14. Matthews, B., &Ross, L. (2010). Research methods: A practical guide for the social sciences. Pearson Education.
  15. Melnychuk, M., Solmi, F., & Morris, S. (2018). Using compensating variation to measure the costs of child disability in the UK. European Journal of Health Economics, 19(3), 419–433.
  16. Mitra, S., Palmer, M., Kim, H., Mont, D., &Groce, N. (2017). Extra costs of living with a disability: A review and agenda for research. Disability and Health Journal, 10(4), 475–484. https://doi.org/10.1016/j.dhjo.2017.04.007
  17. Mont, D. (2021). Measuring cost of disability. Center for Inclusive Policy (CIP).
  18. Mont, D., &Cote, A. (2020). Inclusive social protection for empowerment of persons with disabilities: Considering the disability-related extra costs in social protection. International Labour Organization and the UN Partnership on the Rights of Persons with Disabilities. https://www.social-protection.org/gimi/RessourcePDF.action?id=56925
  19. Neves, J. (2016). Action research: So much to account for. Target: International Journal of Translation Studies, 28(2), 237–247. https://doi.org/10.1075/target.28.2.05nev
  20. Palmer, M., Williams, J., & McPake, B. (2016). The cost of disability in a low-income country. SSRN Electronic Journal. https://doi.org/10.2139/ssrn.2856285
  21. Parish, S. L., & Cloud, J. M. (2006). Financial well-being of young children with disabilities and their families. Social Work, 51(3), 223–232.
  22. Roddy, Á. (2021). Income and conversion handicaps: Estimating the impact of child chronic illness/disability on family income and the extra cost of child chronic illness/child disability in Ireland using a standard of living approach. The European Journal of Health Economics, 23, 467–483. https://doi.org/10.1007/s10198-021-01371-4
  23. Shahat, A. R. S., &Greco, G. (2021). The economic costs of childhood disability: A literature review. International Journal of Environmental Research and Public Health, 18(7), 3531. https://doi.org/10.3390/ijerph18073531
  24. Sharpe, D. L., & Baker, D. L. (2007). Financial issues associated with having a child with autism. Journal of Family and Economic Issues, 28(2), 247–264. https://doi.org/10.1007/s10834-007-9059-6
  25. Smythe, T., Zuurmond, M., Tann, C. J., Gladstone, M., & Kuper, H. (2021). Early intervention for children with developmental disabilities in low and middle-income countries: The case for action. International Health (1876–3413), 13(3), 222–231. https://doi.org/10.1093/inthealth/ihaa044
  26. UN Department of Economic and Social Affairs. (2018). Disability and development report: Realizing the sustainable development goals by, for and with persons with disabilities. https://www.un.org/development/desa/disabilities/wp-content/uploads/sites/15/2019/07/disability-report-chapter2.pdf
  27. Watson, N. (2012). Theorising the lives of disabled children: How can disability theory help? Children & Society, 26(3), 192–202. https://doi.org/10.1111/j.1099-0860.2012.00432.x
  28. Wilkinson-Meyers, L., Brown, P., McNeill, R., Patston, P., Dylan, S., & Baker, R. (2010). Estimating the additional cost of disability: Beyond budget standards. Social Science & Medicine, 71(10), 1882–1889. https://doi.org/10.1016/j.socscimed.2010.08.019
  29. World Bank. (2017). The price of exclusion: Disability and education. Disability gaps in educational attainment and literacy. https://documents1.worldbank.org/curated/en/396291511988894028/pdf/121762-replacement-PUBLIC-WorldBank-GapsInEdAttainmentLiteracy-Brief-v6.pdf
  30. WHO, & World Bank. (2011). World report on disability 2011. World Health Organization.
/content/journals/10.5339/difi.2023.10
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The disability price tag: The economic costs of caring for children with disabilities in Qatar
Doha International Family Institute Journal 2023, 10 (٢٠٢٣); https://doi.org/10.5339/difi.2023.10
/content/journals/10.5339/difi.2023.10
/content/journals/10.5339/difi.2023.10
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  • نوع المستند: Research Article
الموضوعات الرئيسية children with disabilities, disability costs, disability economics, disability in Qatar, mixed methods and neurodevelopmental disabilities

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